I’m never really on this blog anymore, I’m terrible. Also I don’t have Internet so currently using my phone. Follow my main blog for ileostomy ramblings if you wish
Queen-wasp.tumblr.com
Hi! I just wanted to say, that I have had a bag since I was one (I'm fifteen now) and I just adore you for this blog. Sadly, I'm not as confident as you are, but now that I know there are other people out there like me, I'm not so ashamed anymore. x c:
AnonymousOh wow, since you were one! The bags are so teeny for babies! I’m really glad you feel a bit better about it, but you should never ever feel ashamed about having a bag, I bet you are wonderful!x
Sorry I’m so useless with this blog, I’ve no Internet so I’m rarely on here but ill try and update here and there. Hope everyone’s okay, feel free to message! Xo
Just waving a hand at a fellow ostomate ... I'm 4 years out this June! How is life for you these days?
Hello!! Sorry it’s taken me a while to get back to you, I don’t have Internet so I’m rarely on here. Life for me is good, thank you for asking. how about you?
you make me feel like the world isnt over your beauty goes beyond a face, it resembles courage. as i too have faced impossible odds. i have a ileo and a colostomy. ive been ashamed of myself. and im glad i stumbled on your blog. for the first time in 2 years,, ive searched colostomy on tumblr. only to be encouraged by the results. thank you. for showing me a positive outlook on the pain and poop i must endure.
That’s probably the nicest thing anyone’s ever said. Thank you. I’m glad I’ve helped you see the positive side of things, I know it’s difficult but there are a lot of positives! I hope you’re okay and thank you so much for messaging, you should never have to feel ashamed, no way at all. Keep on being posi!! X
I'm a recent bag addition to the stoma family!! Ups & downs so far..one day at a time I guess xxx
Hello! Welcome to the family, hope you’re feeling okay. Yup, definitely, one day at a time, it’ll get better (and easier) promise :) xx
Hiya - its fashionandanostomy (I can't ask directly from that account because of tumblr stupidity) - but if your prior commenter has ANY questions about clothes and ostomies (even playsuits which I had to look up, being all American) - she can submit specific questions to my tumblr. I'm happy to do on-line shopping for people or just talk about what has worked for me and my friends who have bags.
AnonymousThat’s lovely, thankyou so much! i’ll publish this for everyone else to see :)
3 years. Any other bag people have a horrible DIP in their scar? Basically looks like I have an ARSE for a stomach hahaha! 💩👎
Hiya, im 21 years old and due to have a permanent ileostomy next month, i've done a lot of research on it and it does sound like a positive thing. i have no other choice but to have the operation. and i was wondering if you could give me some advice and just tell me honestly what to expect and what its like? also, is it still possible to wear playsuits? your blog is so ispirational, cyber hugs!! :) xxx
it’s wonderful to hear someone say the word POSITIVE! i’ve had people message me on here telling me they have to have a bag and how they dont want to it seems dreadful etc etc. At least you’ve taken the time to research! Not gunna lie, my ileostomy was meant to be a temp, but i’ve decided to keep it forever, it’s the best thing that has ever happened to me even though it was the worst time of my life. It’s worked out for the better, definitely.
Okay umm well, it’ll be a difficult couple of weeks when you first get it, having to adjust to this and you may have high output- i did.
Expect accidents, they happen. It’s not the end of the world, although i am guilty of crying over messing the bed and having to change it (waking my boyfriend up in the process haha)
you might find jeans a bit of a pain to wear, the waistband sits right over my stoma, so i opt for high waisted (i wore them before i had the ostomy anyways but they are tons comfier!) you can still wear tight clothes and stuff, your bag isnt visible no matter how many times you think people can see it and tell you have one- they can’t.
blockages- they are a complete pain but if it’s mild it’s easy to get rid. drink tea, it helps. i often find a nice bath and some massaging around the bag helps the blockage ease!
I dunno if you’re having keyhole surgery or not? but if you’re not the scar is a bit scary at first, mines not as noticable now, i won’t lie though- i still can’t touch it and it makes me feel a bit ill, but that’s just me being squemish and ridiculous.
OSTOMY COVERS! always fun, you can get them on ebay or there is a facebook page called ‘team tubey’ which is where i got mine from, it’s leopard print and cuuuute.
it is possible to wear playsuits, yes! it’s possible to wear any item of clothing, i still sometimes wear regular rise jeans, it’s just a bit annoying and can be uncomfortable. I still wear bikinis, no need to be ashamed of the bag or anything, people do tend to have a peek but they’re probably just wondering what on earth it is ha.
You will have down days though, it’s completely understandable, your body has changed. I still get jealous over girls with a nice poo bag/scar free stomach, i sometimes think i look disgusting naked and question my boyfriend as to why he’s even with me. It’s completely silly but it’s how i feel sometimes. You can’t be positive everyday, which is FINE.
I dunno if this has answered any of your questions at all, sorry if not! I think i’ve rambled, literally been typing without stopping so i apologise for the bad grammar/punctuation etc. I’m going to publish this message so others can see what i’ve said. I have probably missed stuff out on the ‘what to expect’ but everyone with a bag is different, i don’t have UC or crohns or IBD or any of the other illnesses, i just had a useless large intestine that decided to give up on me. So if anyone else has any advice please feel free to chip in!
Hope you’re okay and that your surgery goes well! keep in contact xx
